Thursday, May 1, 2014

My Story is Just Beginning...

When I revived this blog my mission was simple...to allow people to follow me on my journey to get a transplant.  I knew it wasn't going to be easy but I did want to share it with others hoping they would understand my life a little better.  I NEVER dreamed that my journey would lead me every it's taken me.  People know who I am...ADAM RICHMAN knows who I am and you know that's all that really matters, lol.  I've shared my story up until this point and have been overwhelmed with the support, encouragement and just awesome feedback I've received.  I've gotten so focused on telling my story that I forgot something very important...my story isn't finished being written.  I'm only halfway through my journey. 

Today I received some information that has turned my thinking upside down for the day.  About a year ago they did an in-service with current transplant candidates explaining to us that there would be some changes in the transplantation process.  This included healthier organs being designated for healthier patients.  The biggest change was how they determined how long you've been listed.  Instead of going by the day you actually got listed, now your time would start from the moment you started dialysis. I was listed April 5, 2013.  Because of the new policy I have actually accrued 4 1/2 years of waiting time.  The average waiting time in IL for a kidney is 3-5 years.  That means my time could be coming a WHOOOOOOOOLE lot sooner than I anticipated.  When I thought about that I was flooded with emotions.  What am I going to do next?  Am I ready for this?  What happens when I get that first call?  How will my life unfold afterwards?  That's when I realized, I've been so focused on the story I have now that I've taken for granted that the rest of my story hasn't been written yet...the GREATEST part of my story hasn't been written yet.  Once I receive my kidney my story STILL won't be completed because it will be a constant journey.  The mere thought that my story could change tonight, tomorrow or even next week brings me to tears.  As I type this, I'm looking through my own tears.  To know that something so precious, so life changing, can be SOOOOOO close, there are no words.  

The only person I've shared this with, other than my parents, is my trainer.  I didn't want to mention it before because it's a little process I've been trying to deal with but he's moving.  Yes, we are breaking up, lol.  Well, he says we're just going long distance.  We have two weeks and two sessions left together.  Being able to share that with him made me happier than anyone will know.  Getting me here has been a TEAM effort and to know that we're almost at the finish line...that's an indescribable feeling.  

I don't know what God is up to, but I learned a loooong time ago to give all things to him, be obedient, sit back and watch him work.  I know that I'm getting ready to walk into my overflow.  My soul CRIES OUT thank you Lord!!!!  Thank you for choosing me to take this journey and thank you for showing me how to let this journey turn me into the woman you purposed me to be.  

So understand, my story is just beginning...follow me as it continues to be written!